Friday, February 27, 2015

Break time

Sometimes the greatest gift, or the finest destination, is the permission we give ourselves to rest or play or be.

Thursday, February 19, 2015

Yay!

I was asked to be the keynote speaker for a national conference today.

Yay!

Time to start working on a message!

Tuesday, February 17, 2015

Public Support Groups?

I am on Facebook a little bit here and there.  I've chosen not to be a very active participant in that realm, but I watch my friends and my families post about their doings.  It is an interesting way to connect with people from the "way back" - like HS, college...

One trend I've noticed is a multi-level marketing concept where people (women?) post information about a product they are selling in conjunction with the promotion of healthy eating and exercise. People in these groups tend to encourage one another on their journey, which, at least from the outside, appears to be mainly about weight loss.

I have no idea if the model is successful, but it sure is prevalent.  Of course, there is a product to sell, so I'm sure that motivates the promoter to be actively engaged with the potential customer base.

Is there a space, like this, that would work for MS support (sans the product sales and promotion of body image)?  Could people bond together to encourage one another on the choices of every day life? This blog is not generating much comment, so I have no idea if it is of any use to anyone.  Perhaps a more interactive forum would be better?

Yes or no?  Let me in on your thoughts!

Friday, February 13, 2015

Another Day on the Treadmill

It is better than nothing, but being on the treadmill does get monotonous after a few weeks.  Really craving some outside (and WARMER) air!  The sun did shine here today, and it was lovely, but I had to make a decision between the indoor treadmill and close to 0 F outdoors.  Indoors, it was.

For me, one thing that makes the time spent on a treadmill worth it is the amount I effort I put into it. Strangely, the harder I work, the more bearable it is.  I guess I'm too engaged in surviving to think about what I'm doing.

Spring is coming; it always does!

Tuesday, February 10, 2015

The Body You Have

"Everything changed the day I understood that if I was to become a runner, I would have to run with the body I had."  - John Bingham, "The Courage to Start"

Substitute whatever fits for "runner:"  walker, dancer, yogi...

Every day I must choose to exercise the body I have.  That body can improve, but if you are deterred from exercise by limitations, it never will.



Sunday, February 8, 2015

Mandolin Day

I always thought my small hands would be great for playing a mandolin!!  Then, I got a mandolin last February and realized my hands aren't big enough!!  It's been a fun journey to mess around with this instrument.  I have no musical background, so this is all new and exciting for me.

It's a great new skill that works on finger strength, coordination, my brain, and my soul.

Relaxation can be hard to come by, and playing a little music sure seems to help.

Do you play an instrument?  Sing?  Is music a part of your personal expression and life therapy? Maybe you can give me a few lessons.  I need them!!

Pick on!

Thursday, February 5, 2015

A Negative in the Research??

Continuing the theme of research on MS and exercise outcomes, and I have found a few references to something that is making me quite uncomfortable.  A "negative" of sorts...

I stand by everything in my previous post.  The tested and measured outcomes for exercise programs are positive.

BUT this is not true across the board, and, hence, I pause.

There were two sub-groups that had very limited or no measurable gains from exercise programs: persons with MS who had high BMIs and those who were in later stages of progressive MS.  This news is alarming to me because these are two of the groups who stand to gain the most.

I searched high and low for the WHYs behind these limited outcomes.  No clear answers.

Somehow the combination of high BMI and MS and/or the advanced stages of the disease are even bigger challenges than the general MS population,

What's the course of action, then?  Simple to say, but dire in its consequences, I believe it is a mandate to fight tooth and nail against falling into either of these categories and start the exercise regiment and healthy living and eating ASAP!  We've got to encourage each other to move.  We've got to devise and access exercise programs for people who deal with MS.  We've got to move forward with the work and the research.

Anyone with thoughts or experience with this, please JUMP IN!